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Children and young people
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National cancer survivorship initiative
– children and young people – phase 1
Aim:
To develop a model of care which encompasses the patient’s follow up journey from completion of treatment for childhood malignancy at Birmingham Children’s Hospital through to adult based long term follow up care at Selly Oak Hospital (University Hospitals Birmingham NHS Foundation Trust).
Objectives:
To incorporate a stratification of patients into risk groups and subsequent allocation to the most appropriate long term follow up model; medical, nurse led or GP postal survey.
Progress/outcomes:
July 2011: Click here for information on the work undertaken for phase 1 of this project. -
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National cancer survivorship initiative
– children and young people - phase 2
Aim:
To work with Birmingham Children's Hospital NHS Foundation Trust (BCHFT) to deliver personalised care for all children and young people surviving cancer – that is both clinically safe, responsive to patients’ and their parents’ or carers’ needs, innovative, and cost-effective to the wider NHS.
Objectives:- To achieve an overall 20% reduction nationally in hospital based out patient follow up appointments (i.e. those patients who are already routinely being followed up).
- To consider the potential to identify percentage follow up reduction in terms of clinically stratified levels of care and a focus on a reduction in unscheduled follow up care.
- To incrementally work towards achieving a 100% target over a 5 year period (tolerance level to be agreed) of patients being provided with a care plan and treatment summary (i.e. on a prospective basis for those patients ending treatment, entering long term follow up and transition).
- To define the models of care and the key components of proposed new models of care.
- To capture and disseminate examples and principles of ‘good practice’.
- To provide robust evidence (including health economics and cost-benefit analysis data) to inform the commissioning process.
Progress/outcomes:
June 2011: Click here for information on postal follow up and nurse led follow up at BCH.